Reliability of reported age at onset for Parkinson's disease
Identifieur interne : 000A03 ( Main/Corpus ); précédent : 000A02; suivant : 000A04Reliability of reported age at onset for Parkinson's disease
Auteurs : Carson R. Reider ; Cheryl A. Halter ; Peter F. Castelluccio ; David Oakes ; William C. Nichols ; Tatiana ForoudSource :
- Movement Disorders [ 0885-3185 ] ; 2003-03.
English descriptors
Abstract
An individual's age at onset of Parkinson disease (PD) can be collected through a variety of sources, including medical records, family report, and clinical observation. The most common source of PD age at onset information in the research setting is family‐report, which is then typically used to classify a subject as juvenile, young, or late age at onset. The reliability of the family‐reported age at onset of PD has not been rigorously examined. The present study used data from individuals diagnosed with PD to evaluate the reliability of age at onset information by comparing data obtained from three sources: 1) the subject's medical records, 2) a Family History Questionnaire, and 3) a Subject History Questionnaire. Among the 149 subjects with data for all three age at onset sources, the estimated reliability was R = 0.94. Similar reliability was observed when the sample was stratified based on gender, age at examination, disease duration, first symptom of PD, and years of education. The three measures of age at onset of PD show excellent agreement, strengthening confidence in the reliability of the reported age of clinical onset for PD. © 2002 Movement Disorder Society
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DOI: 10.1002/mds.10391
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Castelluccio</name><affiliation><mods:affiliation>Department of Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, Indiana, USA</mods:affiliation></affiliation></author><author><name sortKey="Oakes, David" sort="Oakes, David" uniqKey="Oakes D" first="David" last="Oakes">David Oakes</name><affiliation><mods:affiliation>Department of Biostatistics, University of Rochester, Rochester, New York, USA</mods:affiliation></affiliation></author><author><name sortKey="Nichols, William C" sort="Nichols, William C" uniqKey="Nichols W" first="William C." last="Nichols">William C. 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Reider</name><affiliation><mods:affiliation>Department of Neurology, The Ohio State University, Columbus, Ohio, USA</mods:affiliation></affiliation></author><author><name sortKey="Halter, Cheryl A" sort="Halter, Cheryl A" uniqKey="Halter C" first="Cheryl A." last="Halter">Cheryl A. Halter</name><affiliation><mods:affiliation>Department of Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, Indiana, USA</mods:affiliation></affiliation></author><author><name sortKey="Castelluccio, Peter F" sort="Castelluccio, Peter F" uniqKey="Castelluccio P" first="Peter F." last="Castelluccio">Peter F. 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The most common source of PD age at onset information in the research setting is family‐report, which is then typically used to classify a subject as juvenile, young, or late age at onset. The reliability of the family‐reported age at onset of PD has not been rigorously examined. The present study used data from individuals diagnosed with PD to evaluate the reliability of age at onset information by comparing data obtained from three sources: 1) the subject's medical records, 2) a Family History Questionnaire, and 3) a Subject History Questionnaire. Among the 149 subjects with data for all three age at onset sources, the estimated reliability was R = 0.94. Similar reliability was observed when the sample was stratified based on gender, age at examination, disease duration, first symptom of PD, and years of education. The three measures of age at onset of PD show excellent agreement, strengthening confidence in the reliability of the reported age of clinical onset for PD. © 2002 Movement Disorder Society</div></front></TEI><istex><corpusName>wiley</corpusName><author><json:item><name>Carson R. Reider PhD</name><affiliations><json:string>Department of Neurology, The Ohio State University, Columbus, Ohio, USA</json:string></affiliations></json:item><json:item><name>Cheryl A. Halter MS</name><affiliations><json:string>Department of Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, Indiana, USA</json:string></affiliations></json:item><json:item><name>Peter F. Castelluccio MS</name><affiliations><json:string>Department of Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, Indiana, USA</json:string></affiliations></json:item><json:item><name>David Oakes PhD</name><affiliations><json:string>Department of Biostatistics, University of Rochester, Rochester, New York, USA</json:string></affiliations></json:item><json:item><name>William C. Nichols PhD</name><affiliations><json:string>Division of Human Genetics, Children's Hospital Medical Center, Cincinnati, Ohio, USA</json:string></affiliations></json:item><json:item><name>Tatiana Foroud PhD</name><affiliations><json:string>Department of Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, Indiana, USA</json:string></affiliations></json:item></author><subject><json:item><lang><json:string>eng</json:string></lang><value>Parkinson's disease onset</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>test–retest reliability</value></json:item></subject><articleId><json:string>MDS10391</json:string></articleId><language><json:string>eng</json:string></language><abstract>An individual's age at onset of Parkinson disease (PD) can be collected through a variety of sources, including medical records, family report, and clinical observation. 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The most common source of PD age at onset information in the research setting is family‐report, which is then typically used to classify a subject as juvenile, young, or late age at onset. The reliability of the family‐reported age at onset of PD has not been rigorously examined. The present study used data from individuals diagnosed with PD to evaluate the reliability of age at onset information by comparing data obtained from three sources: 1) the subject's medical records, 2) a Family History Questionnaire, and 3) a Subject History Questionnaire. Among the 149 subjects with data for all three age at onset sources, the estimated reliability was R = 0.94. Similar reliability was observed when the sample was stratified based on gender, age at examination, disease duration, first symptom of PD, and years of education. The three measures of age at onset of PD show excellent agreement, strengthening confidence in the reliability of the reported age of clinical onset for PD. © 2002 Movement Disorder Society</p></abstract><textClass xml:lang="en"><keywords scheme="keyword"><list><head>Keywords</head><item><term>Parkinson's disease onset</term></item><item><term>test–retest reliability</term></item></list></keywords></textClass><textClass><keywords scheme="Journal Subject"><list><head>article category</head><item><term>Research Article</term></item></list></keywords></textClass></profileDesc><revisionDesc><change when="2002-01-10">Received</change><change when="2002-06-14">Registration</change><change when="2003-03">Published</change></revisionDesc></teiHeader></istex:fulltextTEI><json:item><original>false</original><mimetype>text/plain</mimetype><extension>txt</extension><uri>https://api.istex.fr/document/84D46327B3146DB17965534D156D83B08C6D4221/fulltext/txt</uri></json:item></fulltext><metadata><istex:metadataXml wicri:clean="Wiley, elements deleted: body"><istex:xmlDeclaration>version="1.0" encoding="UTF-8" standalone="yes"</istex:xmlDeclaration><istex:document><component version="2.0" type="serialArticle" xml:lang="en"><header><publicationMeta level="product"><publisherInfo><publisherName>Wiley Subscription Services, Inc., A Wiley Company</publisherName><publisherLoc>New York</publisherLoc></publisherInfo><doi registered="yes">10.1002/(ISSN)1531-8257</doi><issn type="print">0885-3185</issn><issn type="electronic">1531-8257</issn><idGroup><id type="product" value="MDS"></id></idGroup><titleGroup><title type="main" xml:lang="en" sort="MOVEMENT DISORDERS">Movement Disorders</title><title type="short">Mov. 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Walnut Street, IB‐155, Indianapolis, IN 46202‐5251</correspondenceTo><objectNameGroup><objectName elementName="appendix">APPENDIX</objectName></objectNameGroup><linkGroup><link type="toTypesetVersion" href="file:MDS.MDS10391.pdf"></link></linkGroup></publicationMeta><contentMeta><countGroup><count type="figureTotal" number="0"></count><count type="tableTotal" number="3"></count><count type="referenceTotal" number="20"></count><count type="wordTotal" number="3964"></count></countGroup><titleGroup><title type="main" xml:lang="en">Reliability of reported age at onset for Parkinson's disease</title><title type="short" xml:lang="en">Reliability of Reporting PD Onset</title></titleGroup><creators><creator xml:id="au1" creatorRole="author" affiliationRef="#af1"><personName><givenNames>Carson R.</givenNames><familyName>Reider</familyName><degrees>PhD</degrees></personName></creator><creator xml:id="au2" creatorRole="author" affiliationRef="#af2"><personName><givenNames>Cheryl A.</givenNames><familyName>Halter</familyName><degrees>MS</degrees></personName></creator><creator xml:id="au3" creatorRole="author" affiliationRef="#af2"><personName><givenNames>Peter F.</givenNames><familyName>Castelluccio</familyName><degrees>MS</degrees></personName></creator><creator xml:id="au4" creatorRole="author" affiliationRef="#af3"><personName><givenNames>David</givenNames><familyName>Oakes</familyName><degrees>PhD</degrees></personName></creator><creator xml:id="au5" creatorRole="author" affiliationRef="#af4"><personName><givenNames>William C.</givenNames><familyName>Nichols</familyName><degrees>PhD</degrees></personName></creator><creator xml:id="au6" creatorRole="author" affiliationRef="#af2" corresponding="yes"><personName><givenNames>Tatiana</givenNames><familyName>Foroud</familyName><degrees>PhD</degrees></personName><contactDetails><email>tforoud@iupui.edu</email></contactDetails></creator><creator xml:id="au7" creatorRole="author" noteRef="#fn1"><groupName>and the Parkinson Study Group</groupName></creator></creators><affiliationGroup><affiliation xml:id="af1" countryCode="US" type="organization"><unparsedAffiliation>Department of Neurology, The Ohio State University, Columbus, Ohio, USA</unparsedAffiliation></affiliation><affiliation xml:id="af2" countryCode="US" type="organization"><unparsedAffiliation>Department of Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, Indiana, USA</unparsedAffiliation></affiliation><affiliation xml:id="af3" countryCode="US" type="organization"><unparsedAffiliation>Department of Biostatistics, University of Rochester, Rochester, New York, USA</unparsedAffiliation></affiliation><affiliation xml:id="af4" countryCode="US" type="organization"><unparsedAffiliation>Division of Human Genetics, Children's Hospital Medical Center, Cincinnati, Ohio, USA</unparsedAffiliation></affiliation></affiliationGroup><keywordGroup xml:lang="en" type="author"><keyword xml:id="kwd1">Parkinson's disease onset</keyword><keyword xml:id="kwd2">test–retest reliability</keyword></keywordGroup><fundingInfo><fundingAgency>The National Institutes of Health</fundingAgency><fundingNumber>R01 NS37167</fundingNumber></fundingInfo><abstractGroup><abstract type="main" xml:lang="en"><title type="main">Abstract</title><p>An individual's age at onset of Parkinson disease (PD) can be collected through a variety of sources, including medical records, family report, and clinical observation. The most common source of PD age at onset information in the research setting is family‐report, which is then typically used to classify a subject as juvenile, young, or late age at onset. The reliability of the family‐reported age at onset of PD has not been rigorously examined. The present study used data from individuals diagnosed with PD to evaluate the reliability of age at onset information by comparing data obtained from three sources: 1) the subject's medical records, 2) a Family History Questionnaire, and 3) a Subject History Questionnaire. Among the 149 subjects with data for all three age at onset sources, the estimated reliability was R = 0.94. Similar reliability was observed when the sample was stratified based on gender, age at examination, disease duration, first symptom of PD, and years of education. The three measures of age at onset of PD show excellent agreement, strengthening confidence in the reliability of the reported age of clinical onset for PD. © 2002 Movement Disorder Society</p></abstract></abstractGroup></contentMeta><noteGroup><note xml:id="fn1"><p>See <link href="#app1">appendix</link> for a list of Study participants.</p></note></noteGroup></header></component></istex:document></istex:metadataXml><mods version="3.6"><titleInfo lang="en"><title>Reliability of reported age at onset for Parkinson's disease</title></titleInfo><titleInfo type="abbreviated" lang="en"><title>Reliability of Reporting PD Onset</title></titleInfo><titleInfo type="alternative" contentType="CDATA" lang="en"><title>Reliability of reported age at onset for Parkinson's disease</title></titleInfo><name type="personal"><namePart type="given">Carson R.</namePart><namePart type="family">Reider</namePart><namePart type="termsOfAddress">PhD</namePart><affiliation>Department of Neurology, The Ohio State University, Columbus, Ohio, USA</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Cheryl A.</namePart><namePart type="family">Halter</namePart><namePart type="termsOfAddress">MS</namePart><affiliation>Department of Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, Indiana, USA</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Peter F.</namePart><namePart type="family">Castelluccio</namePart><namePart type="termsOfAddress">MS</namePart><affiliation>Department of Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, Indiana, USA</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">David</namePart><namePart type="family">Oakes</namePart><namePart type="termsOfAddress">PhD</namePart><affiliation>Department of Biostatistics, University of Rochester, Rochester, New York, USA</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">William C.</namePart><namePart type="family">Nichols</namePart><namePart type="termsOfAddress">PhD</namePart><affiliation>Division of Human Genetics, Children's Hospital Medical Center, Cincinnati, Ohio, USA</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Tatiana</namePart><namePart type="family">Foroud</namePart><namePart type="termsOfAddress">PhD</namePart><affiliation>Department of Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, Indiana, USA</affiliation><description>Correspondence: 975 W. Walnut Street, IB‐155, Indianapolis, IN 46202‐5251</description><role><roleTerm type="text">author</roleTerm></role></name><name type="corporate"><namePart>and the Parkinson Study Group</namePart><description>Department of Neurology, The Ohio State University, Columbus, Ohio, USADepartment of Medical and Molecular Genetics, Indiana University School of Medicine, Indianapolis, Indiana, USADepartment of Biostatistics, University of Rochester, Rochester, New York, USADivision of Human Genetics, Children's Hospital Medical Center, Cincinnati, Ohio, USA</description></name><typeOfResource>text</typeOfResource><genre type="article" displayLabel="article"></genre><originInfo><publisher>Wiley Subscription Services, Inc., A Wiley Company</publisher><place><placeTerm type="text">New York</placeTerm></place><dateIssued encoding="w3cdtf">2003-03</dateIssued><dateCaptured encoding="w3cdtf">2002-01-10</dateCaptured><dateValid encoding="w3cdtf">2002-06-14</dateValid><copyrightDate encoding="w3cdtf">2003</copyrightDate></originInfo><language><languageTerm type="code" authority="rfc3066">en</languageTerm><languageTerm type="code" authority="iso639-2b">eng</languageTerm></language><physicalDescription><internetMediaType>text/html</internetMediaType><extent unit="tables">3</extent><extent unit="references">20</extent><extent unit="words">3964</extent></physicalDescription><abstract lang="en">An individual's age at onset of Parkinson disease (PD) can be collected through a variety of sources, including medical records, family report, and clinical observation. The most common source of PD age at onset information in the research setting is family‐report, which is then typically used to classify a subject as juvenile, young, or late age at onset. The reliability of the family‐reported age at onset of PD has not been rigorously examined. The present study used data from individuals diagnosed with PD to evaluate the reliability of age at onset information by comparing data obtained from three sources: 1) the subject's medical records, 2) a Family History Questionnaire, and 3) a Subject History Questionnaire. Among the 149 subjects with data for all three age at onset sources, the estimated reliability was R = 0.94. Similar reliability was observed when the sample was stratified based on gender, age at examination, disease duration, first symptom of PD, and years of education. The three measures of age at onset of PD show excellent agreement, strengthening confidence in the reliability of the reported age of clinical onset for PD. © 2002 Movement Disorder Society</abstract><note type="funding">The National Institutes of Health - No. R01 NS37167; </note><subject lang="en"><genre>Keywords</genre><topic>Parkinson's disease onset</topic><topic>test–retest reliability</topic></subject><relatedItem type="host"><titleInfo><title>Movement Disorders</title></titleInfo><titleInfo type="abbreviated"><title>Mov. Disord.</title></titleInfo><genre type="Journal">journal</genre><subject><genre>article category</genre><topic>Research Article</topic></subject><identifier type="ISSN">0885-3185</identifier><identifier type="eISSN">1531-8257</identifier><identifier type="DOI">10.1002/(ISSN)1531-8257</identifier><identifier type="PublisherID">MDS</identifier><part><date>2003</date><detail type="volume"><caption>vol.</caption><number>18</number></detail><detail type="issue"><caption>no.</caption><number>3</number></detail><extent unit="pages"><start>275</start><end>279</end><total>5</total></extent></part></relatedItem><identifier type="istex">84D46327B3146DB17965534D156D83B08C6D4221</identifier><identifier type="DOI">10.1002/mds.10391</identifier><identifier type="ArticleID">MDS10391</identifier><accessCondition type="use and reproduction" contentType="copyright">Copyright © 2003 Movement Disorders Society</accessCondition><recordInfo><recordContentSource>WILEY</recordContentSource><recordOrigin>Wiley Subscription Services, Inc., A Wiley Company</recordOrigin></recordInfo></mods></metadata><serie></serie></istex></record>Pour manipuler ce document sous Unix (Dilib)
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